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Team Ash
Team Ash
Story
Hi there!
I’m making a difference and walking for Prader Willi Research Foundation Australia - a cause that's close to my heart. I am Finding 15 by walking 5km to make life-changing research a reality for my son Ash, and Prader-Willi syndrome.
Prader-Willi syndrome (PWS) is caused by a loss of genes on Chromosome 15, resulting in all kinds of very complex challenges. PWS is largely unknown and grossly underfunded, even though it affects 1 in every 15,000 babies.
The Prader-Willi Research Foundation Australia (PWRFA) is Finding 15 by working with leading medical scientists to find treatments for symptoms today as well as a genetic solution to activate the silent/missing genes in the future.
Please support my efforts by making a secure, tax-deductible, online donation and by posting a message of support.
Donations made through this platform are secure and will be remitted directly through to the Prader-Willi Research Foundation Australia. 100% of donations will go towards making life-changing research happen.
Thanks so much for your support!
To register to walk yourself go to http://Finding15Walk.gofundraise.com.au and click on the 'Register to Walk' button or go to the menu options on this page an select 'Start Fundraising'
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Prader-Willi Research Foundation Australia Ltd.
We exist to transform life for families living with Prader-Willi syndrome, a non-inherited genetic condition impairing physical, mental and psychological wellbeing. Caused by an abnormality in chromosome 15, people with PWS have low muscle mass, impaired cognition, mental illness including severe anxiety and psychosis, rages, a failed appetite mechanism and numerous medical complications. They require 24/7 food security and supervision (to prevent a fatal binge eating episode) and help with all their daily activities. Families are doing it tougher than any other families living with developmental disability (ACAD study, Uni Sydney). We aim to find transformative treatments to give life to people with PWS and their families.
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